Tales of Woe

From my memorable quotes pile: Harried caregiver: What are we supposed to do next? Instructions from doctors, just getting through the day, plus dealing with bureaucracy? My word, I’m so overwhelmed. Everybody thinks their thing is the most important. Can’t … Continue reading

Re-calibrating – Finding Balance

So, I have new MS lesions. I’m weaker, less stamina. A 3-days of IV SoluMedrol (steroids) infusion knocked me out. I’m recovering. What will my new normal be? Once again, I’m grateful for my health team. It reconfirms for me … Continue reading

Giving Thanks

I’m thankful for my superpower that I shared with my mother, Ruth, and son, Mike – accepting what is. I’m thankful that I was born a  white straight male to a closeted gay dad, Ruben, and a Holocaust survivor, Ruth … Continue reading

Health, Wellness, and Medical Decision Support, Wherever and with Whomever

When diagnosed with multiple sclerosis, I did little research. Here I was, a card carrying member of the research industrial complex heavily involved with the Patient-Centered Outcomes Research Institute (PCORI). I just couldn’t bring myself to Google MS.  I relied … Continue reading

The Thorny Thicket of Feedback and Advice

When I was diagnosed with MS, people came out of the woodwork with advice and feedback. I was so not receptive. When I talked with my neurologist about the advice, he said, everything works for someone. The challenge is figuring … Continue reading

Secretary General of Your Health Team

I want to be a good leader of my healthcare team. How would I know?  Such a swirl of activity. This week my ophthalmologist wanted to refer to me another ophthalmologist.  She said she’d email her to introduce me, send … Continue reading

Adapting – Balance

When diagnosed 7 years ago with Multiple Sclerosis, my neurologist told me I’d had MS for 25 years. Why didn’t I know it before? He said that I was a master at unconscious adapting – my nervous system and brain … Continue reading

Embracing your friend, ignorance

Pondering ignorance this week. Not so much the ignorance we see with politicians (although that can be quite awesome on a massive scale), but the not knowing. Discovering a realm of not knowing you didn’t know existed. I’ve seen varied … Continue reading