Who’s your health co-pilot?

As an e-patient advocate, I passionately believe in each of us being the pilot for our own health flight. So many legs in that health flight. While its a non stop flight for each of us from birth to death, … Continue reading

Leadership in Family Health Crises

Sudden, severe illness or protracted undefined illness likely causes a family health crisis. Families in health crisis start from a position of acute stress yet have much to do. For a frame. consider that physical health starts with spiritual health, then … Continue reading

Should you bring someone with you to your next doctor’s appointment?

Should you bring someone with you to your next doctor’s appointment? If you’re asking, the answer is yes.   How do you be the best companion if you’re asked? Prep in advance, listen, record, ask questions. Know why you’re going? That means both What does the … Continue reading

Belonging to your health team

Belonging to your health team. Seems oxymoronic. Of course you belong to your health team. There is no health team without you. Yet sometimes people feel out of control, not accepted by their team. Maybe it’s because it’s not their … Continue reading

Test driving and consent to share

This health journey I’m on can be quite a ride. Tomorrow I’ll test drive a new neurologist. They want me to bring certain information from my previous neurologist: Recent notes, medications, MRIs on CD. They can’t just go get it. … Continue reading

Honoring and aligning silos

Teaching in a nursing leadership academy this week about acting as a change agent or change catalyst in an organization or team. Common theme for the participants – frustration overcoming silos, working across silos, aligning silos – silos, silos, silos. … Continue reading

A Powerful Union: Relationships within Health Teams

The relationship between health team members, especially people and their clinicians and caregivers, frequently arises as a topic of this blog. Let me share with you one of the values of Advocates.  I work for Advocates as VP of Quality. … Continue reading

Dialogue

Let me tell you about our family’s experience as a team, talking, supporting, and coordinating during the terminal phase of our son, Mike’s death from metastatic melanoma. Mike was living near Buffalo with his girlfriend, going to school, my wife … Continue reading

Are We Safe?

Sometimes our health journey seems fraught with peril. So much can go wrong. Unexpected danger lurks around every corner. Yet, team members (caregivers, loved ones, professionals) accompanying us on our health journey all seek a safe ride for us and … Continue reading