Tales of Woe

From my memorable quotes pile: Harried caregiver: What are we supposed to do next? Instructions from doctors, just getting through the day, plus dealing with bureaucracy? My word, I’m so overwhelmed. Everybody thinks their thing is the most important. Can’t … Continue reading

Personal Health Goals

  As a person with MS, I’ve written that my personal health goals are to progress as slowly as possible and do nothing that will mess with my pathological optimism. People I talk with about personal health goals say it’s … Continue reading

Three Words for the Year

CareGiving.com is sponsoring Note to Ourselves For 2016 and Three Words for 2017.  My Note to Myself: Continue to do what I’m doing. Appreciate the small stuff (fresh running water, regular garbage pickup). Appreciate living within our means. Appreciate the … Continue reading

Re-calibrating – Finding Balance

So, I have new MS lesions. I’m weaker, less stamina. A 3-days of IV SoluMedrol (steroids) infusion knocked me out. I’m recovering. What will my new normal be? Once again, I’m grateful for my health team. It reconfirms for me … Continue reading

Recommit for the New Year

At year-end, I’m still on a mission to Empower people as they travel together toward best health. (Patients, caregivers, clinicians, direct care and support staff, communities) To understand and support each other To balance workload and capacity To achieve the best outcomes … Continue reading

Person-Centered #CarePlanning – What Data?

More about person-centered #CarePlanning. (If you missed my first post go here) Our health teams struggle to communicate at transitions (between team members, when adding a new team member, between people, offices, and settings) – it’s a perfect tower of … Continue reading

#CarePlanning – a Mission From God

My wife and I built a house together – the whole house, everything except drilling the well. While building, living and improving it over 5-6 years, we had a running argument about paneling. She hated it and I loved it. … Continue reading

Giving Thanks

I’m thankful for my superpower that I shared with my mother, Ruth, and son, Mike – accepting what is. I’m thankful that I was born a  white straight male to a closeted gay dad, Ruben, and a Holocaust survivor, Ruth … Continue reading

Health, Wellness, and Medical Decision Support, Wherever and with Whomever

When diagnosed with multiple sclerosis, I did little research. Here I was, a card carrying member of the research industrial complex heavily involved with the Patient-Centered Outcomes Research Institute (PCORI). I just couldn’t bring myself to Google MS.  I relied … Continue reading