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Apr 18 2026
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Participatory Governance: Right People Right Question

By Danny van Leeuwen Advocate, ePatient, Leader, Podcasts No Comments

Podcast: Play in new window | Download (Duration: 19:49 — 15.9MB) | Embed

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Participatory governance in healthcare means asking the right people the right questions. Three stories where listening as leadership changed everything.
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Mar 10 2026
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Transparency in AI: How the Sausage Gets Made

By Danny van Leeuwen Caregiver, ePatient, Informaticist, Podcasts, Researcher

Transparency sounds simple until you’re standing in a meatpacking plant. Health Hats digs into what we want to know—and why it matters.

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Mar 01 2026
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Crutches, Caves, and Currents: Tubing in Belize

By Danny van Leeuwen Podcasts, Traveler, Video

Podcast: Play in new window | Download (Duration: 22:44 — 18.2MB) | Embed

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Health Hats walks & floats through ancient Maya caves in Belize with forearm crutches, teamwork, trust, and shared decision-making every step of the way.

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Feb 08 2026
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If You Have a Body, You’re an Athlete: Training for MS

By Danny van Leeuwen Podcasts, Traveler

Podcast: Play in new window | Download (Duration: 34:26 — 27.6MB) | Embed

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Former Nike exec Mark Hochgesang interviews Danny on Heavy Hitter Sports Podcast about MS & being an adaptive athlete. Just back from Belize! Training works.

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Jan 17 2026
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Trust Me, I’m Deciding. When Data Meets Doubt.

By Danny van Leeuwen Advocate, Podcasts, Video

Trust: 120 episodes and still learning. This time: how we decide to act on health data. It’s messy. Let’s wade in together.

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Dec 28 2025
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Retirement Improvisation – Onward: 2025 Holiday Letter

By Danny van Leeuwen Advocate, ePatient, Family man, Informaticist, Musician, Podcasts, Traveler, Video

Podcast: Play in new window | Download (Duration: 25:29 — 20.4MB) | Embed

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Health Hats Danny celebrates 50 – years with his honey & pounds lost. With gratitude for privilege, & best health thru family, media, music, travel, & advocacy.

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Nov 23 2025
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A Third on the Shelf: Rethinking Power in Community Research

By Danny van Leeuwen Advocate, ePatient, Podcasts, Researcher, Video

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Kirk & Lacy on shifting research funding away from federal grants: what happens to community partnerships when the money—and the rules—change?

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Nov 02 2025
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Give Me My Damn Data. Then What? Managing Permissions.

By Danny van Leeuwen Advocate, Consumer, ePatient, Informaticist, Podcasts, Researcher, Video

Podcast: Play in new window | Download (Duration: 43:49 — 35.1MB) | Embed

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Your health data belongs to you—but how can you share it safely? Fabienne Bourgeois, MD, exposes the complex truth about privacy, permissions, and data control.

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Oct 06 2025
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Catch-22.0: AI Creates Problems It Solves

By Danny van Leeuwen Advocate, Consumer, Informaticist, Podcasts, Researcher, Video

Podcast: Play in new window | Download (Duration: 23:04 — 18.5MB) | Embed

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Healthcare AI isn’t a tech problem—it’s a mirror reflecting how our health system already fails. Uncomfortable truths from Datapalooza 2025.

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Sep 07 2025
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Letter: Trust Me, I’m Skeptical

By Danny van Leeuwen Advocate, ePatient, Leader, Podcasts, Video

Podcast: Play in new window | Download (Duration: 4:07 — 5.7MB) | Embed

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Letters beat emails for trustworthiness. A gullible skeptic reflects on navigating trust in a 50-year marriage, and the energy cost of distrust.

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Danny van Leeuwen - Learn with people on the journey toward best health
  • Podcast
  • Topics
    • Patient Engagement
    • CDS: Choices About Your Health
    • Caregiving
    • Adaptive Travel
    • Covid-19
    • Chronic Pain Management
    • Transitioning from Pediatric to Adult Medical Care
    • Interviews of Danny
    • Family Caregivers: Hospital to Home
  • YouTube Channel
  • Support
  • Explore
  • Contact